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  #21  
Old 06-17-2017, 03:51 PM
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Next appointment with eye surgeon is Tuesday. He grafted my eye (they told me stem cells but what they didn't tell me is they grafted human baby placenta to my eye - yuk!) and hasn't seen me since I finally got the bloodtest results so this is still all pretty preliminary (repairing my eye was most urgent) and he hasn't been given a chance to explain it all to me.

Have the password to the LabCorp results portal at home. Will check what he tested for and share here. I had already been tested for Lyme disease with the 'nerve damage' and was negative.

Googling some of the terms offered by SCEye, granulomatosis with polyangiitis sounds like a match for my older brother and my symptoms. Both with multiple episode of pneumonia like coughing to point ribs separating, kidney pain, pain/swelling in joints like arthritis, tracheal stenosis and the neuropathy.
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  #22  
Old 06-17-2017, 05:12 PM
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Segmentation by Specialization Sucks Frustration

Quote:
Originally Posted by eyeman1234 View Post
The internet is not a place to seek specific medical advice for an undiagnosed condition. You wanted to vent about Labcorp, but maybe you asked for too much.
True. Sad that our health system is so scrambled that I still don't have a diagnosis.I have paid thousands and thousands being sent to the wrong places and sent to hospital wasting 5 days of my life being told I had/about to have a heart attack.

Ever since I started doing annual physicals I have had a different physician each year because they leave the physician group. One I saw last time is no on extended maternity leave. Same goes for neurologists. And the last one I saw is no longer there either.

The segmentation by specialization sucks for complicated issues like this. I told them I am having trouble breathing and they say go to a pulmonary doctor. I say I feel pain in my gonads and am referred to a urologists. Nobody is looking at the BIG picture. Have had made to visits to ER when symptoms got out of control and one visit they said it was sleep apnea. What a crock. Kid ER doctor must diagnose that for everybody he has no explanation for.

And that eventually it was my eye blowing up that led an eye specialist to help diagnose what hospital visits and primary care physicians have been missing all this time.

Last edited by ProRallyCodriver; 06-17-2017 at 05:45 PM.
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  #23  
Old 06-17-2017, 05:46 PM
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I'm sorry to learn of what you've been through but you have hit the nail on the head. No one's looking at the BIG PICTURE for you.

Before you read further, please understand that when I was discussing my health issues, I was just relating to you my problems. I wasn't hinting that you have what I have. I just happen to also suffer from a chronic degenerative autoimmune disease that runs in my family. And there's no reason to believe you have Lyme Disease because I was bitten by a tick in Eastern Germany and I saw the tick afterwards, not realizing Lyme Disease is endemic in (Central Europe) Germany.

My advice regarding "Liquid Tears", icing, vitamin C and amino acid supplements do not constitute treatment. That would be truly laughable. They are simply very prudent innocuous healthy practices that will give your body a bit of relief and help make it stronger.

You should have a family doctor who keeps tabs on all of your interactions with the specialists and your meds. Your family doctor should be the healthcare person who is looking at the big picture for you. Find yourself a good family doctor, someone who is willing to take on a patient with your health history. I once had some difficulty doing that myself, as prospective doctors would tell me they couldn't take me on after learning of my health history but I eventually did locate a good family doctor. Make this one of your most important tasks.
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  #24  
Old 06-17-2017, 07:07 PM
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Originally Posted by 4th_gear View Post
You should have a family doctor who keeps tabs on all of your interactions with the specialists and your meds. Your family doctor should be the healthcare person who is looking at the big picture for you. Find yourself a good family doctor, someone who is willing to take on a patient with your health history. I once had some difficulty doing that myself, as prospective doctors would tell me they couldn't take me on after learning of my health history but I eventually did locate a good family doctor. Make this one of your most important tasks.
Tried and still am trying to do that. Problem has been 3 different ones in 3 years because they all seem to play practice pong. And the one I saw last is now on extended maternity leave, maybe with no intention on returning from being just a mommy.
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  #25  
Old 06-18-2017, 12:06 PM
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Originally Posted by ProRallyCodriver View Post
Tried and still am trying to do that. Problem has been 3 different ones in 3 years because they all seem to play practice pong. And the one I saw last is now on extended maternity leave, maybe with no intention on returning from being just a mommy.
I've moved a few times in my life and had to find new family doctors each time but they've all stayed with me, past 10 years each time, until I moved. My last 2 family doctors were actually ladies in their 40s and 50s. They were very respectful, responsive and attentive. Perhaps older family doctors with a bit of history at their clinics will prove better choices.
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