Anyone know anything about kidney stones? | FerrariChat

Anyone know anything about kidney stones?

Discussion in 'Other Off Topic Forum' started by Ike, Aug 17, 2005.

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  1. Ike

    Ike F1 Rookie

    Nov 4, 2003
    3,543
    I have had migraine headaches for years and have been on tricyclic antidepressants for the past 3 years with them helping somewhat. I am now on Topamax to help prevent them. In addition to this stuff making me sound like I am a complete idiot I am told it will cause me to have kidney stones. Fun.

    I already drink about 2-3 .5 liter bottles of water a day. I cut out cokes. Thankfully the Topamax makes them taste horrible. I drink a lot of good orange juice and iced tea. I've been told to drink more water to help with the kidney stones but I hate water. Is there enough water in the juice and tea to make up for it. I know that tea is just about all water but I didn't know if the brewing took away the beneficial part of the water.

    Is there anything else I can do to slow them from growing?

    Thanks for any info guys.
     
  2. JaguarXJ6

    JaguarXJ6 F1 Veteran

    Feb 12, 2003
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    Sunny
    http://www.ferrarichat.com/forum/showthread.php?t=44728
    http://www.ferrarichat.com/forum/showthread.php?t=50886
    http://www.ferrarichat.com/forum/showthread.php?t=23416

    If there was something in the water that could be boiled away, than it would be in a supplement/vitamin/medication so you wouldn't have to drink loads of it. Unfortunately plain tap water will do just as well as distilled water where the impurities have been boiled off.

    Sorry to hear about your dilemma (condition?). I hear its something you don't want to wish on a person.

    Good luck!

    Cheers,
    Sunny
     
  3. el Carnicero

    el Carnicero Formula Junior

    Mar 28, 2005
    435
    West of Laramie
    Where's Uro when we need him??? WTF?
     
  4. Ike

    Ike F1 Rookie

    Nov 4, 2003
    3,543
    thanks for the links sunny. I should have searched. I thought I remembered reading something about them on here. I've probably posted in one of them at some point. lol.

    I'm hoping I don't get them. As I look around on the web it seems that a lot of people on this drug don't get kidney stones and some get a lot of them.

    My biggest problem with it so far is that while I am talking I come up blank for words. I am not even up to my full dosage yet; I can see this getting old really fast.
     
  5. UroTrash

    UroTrash Four Time F1 World Champ
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    First, sorry to hear your plight.


    Second, to generalize about the cause of stones would be really misleading because some stones form in alkaline urine and some form in acidic urine,etc,etc,etc.

    It is really important to get a real metabolic work up done. This is not just having the stone analyzed! I have seen many well meaning docs try to give advice based simply on a stone analysis and the poor patient is given random and misleading advice.




    Third, the common denominator for treating all stones is staying very well hydrated. You should have a urine output of >2 liters per day consistently, most important on hot sweaty days. You can check this simply be seeing if you fill up a 2 liter coke bottle over a 24 hour period some week end. Water prefered, if not water then water-y drinks like unsweetened things.

    Fourth, there are a few really serious reasons to make stones so don't neglect #2 above!


    Fifth, don't worry about distilled water etc, the world's hardest tap water has such a tiny bit of calcium compared to an ounce of cheese or a sip of milk its not even comparable.



    Sixth, do not restrict your diet with out a good metabolic work up! Simply reducing calcium in many cases will actually cause MORE stones (not enough calcium in the gut to bind oxalate, etc), so don't miss #2^^^^.



    Addendum:
    A proper metabolic work up would be 3 things:

    1. Stone anaysis,
    2. 24 hour urine for Calcium, phos, uric acid, oxylate, citrate,
    3. Blood draw for calcium, phos, uric acid, protein, creatinine, BUN etc.
     
  6. Ike

    Ike F1 Rookie

    Nov 4, 2003
    3,543
    I just read what you said about stone analysis. I have not had a stone yet. Do I have to have one before these test can be done?
     
  7. UroTrash

    UroTrash Four Time F1 World Champ
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    Wait. You DON'T HAVE A STONE YET........................



    I'm such a duffus.

    ...


    ...


    In that case, drink lots of water and don't worry about it.
     
  8. Ike

    Ike F1 Rookie

    Nov 4, 2003
    3,543
    lol. After being told by two neurologists that I have a good chance of getting them from Topamax and reading of other people getting them from being on this drug I'm scared now so I'm trying to find out everything possible to prevent them.

    I guess I'm going to be one of those people you see carrying the water bottle around with them everywhere.

    Thanks again.
     
  9. UroTrash

    UroTrash Four Time F1 World Champ
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    If you want get a one shot X-Ray called a KUB and a urinalysis to check for blood, If they are both normal you are very likely OK. OK?
     
  10. menoy

    menoy F1 Rookie

    Mar 12, 2005
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    MRodziewicz

    Doesn't tea actually dehydrate the body (I recall hearing smth like this).
     
  11. wax

    wax Five Time F1 World Champ
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    Ask Doctor if 500 mg. Dolobid might be a good prescription for you. It ended 3 years of hell, pronto. Didn't have a single side effect on me...

    ...unless one includes side benefits. As you can see by my avatar picture, it made me even more handsome.
     
  12. PeterS

    PeterS Five Time F1 World Champ
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    Jan 24, 2003
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    Hey Uro

    Is there any truth about the guy that passed a stone and fataly shot his dog?
     
  13. UroTrash

    UroTrash Four Time F1 World Champ
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    Bad:

    Very mild diuretic (caffeine). Has a little oxalate as well.


    Good: If you drink in kinda dilute and watery with no or little sugar the benefit of the hydration out weighs the little bit of oxalate IMO.
     
  14. Ike

    Ike F1 Rookie

    Nov 4, 2003
    3,543

    Ok. I will look into this. Is this something that can tell if a stone is forming?

    If that is what it does I will have it done. I have only been on the drug a short time. Maybe after I have been on it for a while I will have it done. I am going to try and learn some more about it. If I can find out how much time goes by being on the drug before stones start showing up it will help me know when to have this done.

    Thanks again.
     
  15. Ike

    Ike F1 Rookie

    Nov 4, 2003
    3,543

    I will write that down and ask about it. After being put on this drug I am being sent to yet another specialists so I guess I could be switched to anything.

    So far this drug isn't helping the migraine headaches but I am starting to get the side effects of it. I'm not happy with it so far but it is very early to see any results.
     
  16. UroTrash

    UroTrash Four Time F1 World Champ
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    Nope. Tell.
     
  17. UroTrash

    UroTrash Four Time F1 World Champ
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    i though they quit making Dolobid 10 years ago. Still around?

    whats Dolobid have to do with this anyway?
     
  18. wax

    wax Five Time F1 World Champ
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    Don't fret - I was on 10 different meds simultaneously. All to get rid of headaches.


    Look at it this way - you can have a whole set of key rings, but each key only opens & locks one door.

    Or, you can have a Master Key that opens all the doors & breeze right on in.

    That's what Dolobid did for me.

    Results may vary.
     
  19. UroTrash

    UroTrash Four Time F1 World Champ
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    I get it. I always thought of it as an arthritis med, so I was corn-fused.
     
  20. wax

    wax Five Time F1 World Champ
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    Understandably so! Damn shame, really. See, the Neurologist I had - let's call him Dr. Ice Cold (and for good reason, as his bedside manner was lacking) - said something to this effect - "this is a new drug & it's actually supposed to be for something else, but there's no side effects, especially compared to anything you're taking now, so let's see what happens." (resumes chilling room)

    A week later, I was done. 3 years of non-stop - and I do mean non-stop for a second - headaches and thrice-weekly visits to Doc & Relaxation Therapist ended, as did the meds and out-of-pocket expense.

    A few years later, he went bankrupt.

    Coincidence? I think not. Perhaps he prescribed this to others who didn't need to see him anymore, either.

    Now, I should mention the type of headache I had - with each heartbeat - it was pounding. I've still got the scar right below the hairline on the spine - I was pierced by a rod during a very, very bad car accident. Coulda been a lot worse, to put it mildly. In no certain order, I'm alive, I can walk, F-chat to heart's content, pork the ol' lady, etc.

    Really should have looked it up to begin with - Dolobid was expensive when it first came out - Generics have likely taken it's place in general Rx conversation. Though Dolobid comes up early and often on searches, Diflunisal is it's apparent Generic (and cheaper) successor.
    What's not to like?
    http://www.rxlist.com/cgi/generic3/diflunisal_cp.htm

    In a nutshell - may be hlpful to cluster/migraine sufferers
    http://remedyfind.com/rm-908-Dolobid.asp

    Headaches were as described & as one can see, diflunisal/Dolobid are listed under Medications.
    http://www.medicinenet.com/migraine/focus.htm

    I think this well-kept secret would put a whole lot of headache suffering (and careers) to an end - hence, "Damn shame, really."
     
  21. UroTrash

    UroTrash Four Time F1 World Champ
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    Dolobid can be very hard on the stomach, kinda like Indomethocin.

    If your tummy is OK with it, it's a fine drug.
     
  22. Ike

    Ike F1 Rookie

    Nov 4, 2003
    3,543
    Thanks for all the help guys.

    I will ask about that other drug. It seems as if it may be more of an anti-inflammatory and worked for you because your headaches were caused by injury and not from an internal problem. I don't know. I will ask about it and see if it could apply to me as well. Thanks for the info and links on it.

    Thanks again.
     
  23. Erik330

    Erik330 Formula Junior

    May 8, 2004
    711
    Ohio
    FWIW, and I'd like to hear Uro's take, I suffered from a couple of kidney stones in the mid '80s. Like being kicked in the balls and having the worst case of gas you've ever had simultaneously.

    My doc advised me to drink a glass of cranberry juice every day. I do, and haven't had one since. As I say, FWIW.
     
  24. wax

    wax Five Time F1 World Champ
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    Yeah - see, though injury-induced, as alluded to on previous post - Headaches were as described
    http://www.medicinenet.com/migraine/focus.htm

    - these were more often than not, the cluster**** of a migraine in every sense of the word - not just one same ol- same ol' you'll get used to it headache - though it was nonstop for 3 goddamned years I wouldn't wish upon (well, almost) anyone. I also spent a pretty penny on same type of antidepressants, so, my empathy runs a little strong on this subject.

    I had a relapse some time later - went to Doc, asked for Dolobid by name - Voila! Gone! I haven't been to a Doctor in years and years. If the living hell ever starts up again, I will do exactly the same thing.

    As the good Doctor cautions, some folks experience downsides - I had none whatsoever. Ate what I wanted (yay, charbroiled food & ice cream), sunlight was my friend again, etc.. As you can imagine - I had plenty of downsides with a multitude of other meds, so this was a deity-of-your-choice-send. My only hope is your remedy, whatever it may be, proves as satisfactory.
     
  25. Ike

    Ike F1 Rookie

    Nov 4, 2003
    3,543
    I am definately going to talk to them about it. It is good to learn of other things out there that could at least be options. Since I just started this drug not to long ago I don't know if they will want to pull me off of it but if there is something else with less possible side effects I will want to.

    My neurologist is sending me to another neurologist that specializes in migraines so I will bring it up to her.


    Did they tell you what happened in the injury that caused the migraines to start?

    I've had migraines since 5th grade but never constant, maybe once every couple of months. A few years ago I was in a wreck and started having them all the time. There was some injuries to my spine/neck and some nerve damage and during the headaches I can feel pain going down to that area. I guess that is what caused the headaches to start being continuous.

    Thanks again for all the info
     

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